ONE HUG with Elly the travelling epilepsy bear and little Ella Dennent was on top of the world.
The seven-year-old, from Banksia Beach, was one of the first children in Queensland to receive a visit from Elly, who is on a trip to visit families nationwide, thanks to Epilepsy Action Australia and Epilepsy Parents Australia.
Elly dropped into the Dennent household last Monday with her travel diary in tow. Mum Kristine said Ella had fallen in love with Elly straight away.
"She absolutely adores the bear. I don't know how I'm going to give it up," she said.
"It's amazing how much of a difference it's made and she really loves fluffy toys anyway.
"When she gets home from school she pretends that she's at school again and her toys are her students. She just loves Elly the bear.
"They even went down the slide together and Ella showed all her friends. It was really sweet."
Ella has a rare complex form of epilepsy and is currently on three different types of medication. Her seizures started at 10 months of age.
"It was very scary," Kristine said. "Her seizures were really quite violent.
"She was in hospital for many months and she even had her first birthday in hospital so she was a mess.
"She's had a really rough trot. It's affected her cognitive skills and she has also been diagnosed with autism spectrum disorder."
Although Elly will only spend a short amount of time with Ella and her family before moving on, Kristine said it made a difference to know that other families would have the same opportunity.
"The concept is a really lovely idea," she said.
"I was one of the people who started it but the epilepsy organisation took it on.
"A few of us actually mentioned that it would be a good idea for somebody to do it so they've actually taken it on board and it's gone from there.
"As a family it was lovely to have the bear come in because it comes with a diary and we'll take photos to put in the diary.
"That goes on to the next family and they'll see the photos and everyone gets to see what happens as the bear moves around.
"It's a really lovely thing because we also follow a Facebook group with other kids with epilepsy as well.
"So it's nice that we can see pictures of what other families are doing and we post as well." Kristine also started a Facebook group for parents who have children with epilepsy.
"It's taken off unbelievably well and we now have about 650 members," she said.
"Parents can chat about what their kids are doing and it means we're not alone any more. "If someone has a child with epilepsy they may want to join this wonderful Facebook group and interact with other parents."
Visit facebook.com/groups/ epilepsyparentsaustralia.
Phone Epilepsy Action Australia on 1300374537 or visit epilepsy.org.au
Find out more about the travelling epilepsy bears by visiting epilepsy.org.au/ ellyandelliotbears
In an elevated position with a prized north-east aspect, this near new home embraces easy care, relaxed living in a quality neighbourhood that is peaceful and...
This truly immaculate home, only three years old, showcases gorgeous lush green valley views from its elevated 1019m2 block and offers stylish, low maintenance...
Nestled away in a quiet tree-lined cul-de-sac in prestigious Minyama, this impressive deep waterfront family home has a five star feel and boasts an ideal north...
** Open Saturday 10-10.30am** If character and charm are high on your priority list, along with a large usable block with side access and room for a shed, look no...
What better way to spend your time in Alex than in your very own ocean 'cinema'. This high quality renovated 3 bedroom apartment has the perfect balance between...
This house should be on every buyers tick list! 4 large Bedrooms, 2 Bathrooms, one of which is a large ensuite, a massive outdoor deck onto the back yard, a...
Spectacular ocean views greet you and your guests every day if you own this apartment. Fully surrounded with ocean views, mountain views, parkland views and future...
Three Bedroom apartments with a double lock up garage and low body corps in Alex are rare, and not likely to last long. Situated on the second floor of 'Seaview'...
Henzells Agency is proudly marketing one of the last remaining original beachside houses in Caloundra, representing a rare opportunity for astute buyers. Perched...
This centrally located ground floor unit in a small complex is the perfect starter for first home buyers or investors. In addition to its low maintenance open plan...
Join the Community.
Get your local news, your way.
Update your news preferences and get the latest news delivered to your inbox.